Be Safe And Seizure Smart On Halloween!

We love Halloween!

Dressing up, going door to door, seeing all the different costumes people come up with and walking up to the spooky decorated houses is so much fun!

However, we also have rules to keep us safe and seizure smart while we’re Trick or Treating!

Here are a few things to remember to keep your kids safe and seizure safe:

  • Make sure you don’t skip your seizure medication.
  • Have a cell phone and emergency meds on hand if you are walking long distances.
  • Trick or treat with a friend of family member familiar with your seizures.
  • If you are photosensitive avoid houses with strobe lights.
  •  It’s a good rule of thumb to check all your candy before eating it, but definitely don’t eat it if you’re on a restrictive (Ketogenic or modified Atkins) diet.

A great suggestion I got from my sister-in-law Denise over at RunDMT for kids who are unable to eat their candy due to dietary restrictions:

  • Check out the Halloween Candy Buy Back Program!  Some dentists will buy back your kids candy and then ship it overseas to the troops!  So not only will your kid be making money… they’ll be helping out our military overseas! It’s a win win!
  • Wear reflectors or glow necklaces so cars can see you.
  • Always walk on the sidewalks when possible.
  • Always look both ways before crossing the street.
  • NEVER enter a home for candy!

It’s important to be safe and seizure smart, but it’s also important to make sure you have FUN!

Here are a few fun facts about Halloween I found over at the Epilepsy Therapy Project:

  • The celebration of Halloween started in the United States as an autumn harvest festival. In pioneer days, some Americans celebrated Halloween with com-popping parties, taffy pulls and hayrides.
  • In the late nineteenth century, with the large influx of Irish immigrants into the U.S., Halloween became associated with ghosts, goblins and witches.
  • Jack-o-lanterns are an Irish tradition. In Ireland, oversized rutabagas, turnips and potatoes were hollowed-out, carved into faces and illuminated with candles to be used as lanterns during Halloween celebrations.
  • The pumpkin originated in Mexico about 9,000 years ago. It is one of America’s oldest known vegetables. Pumpkins generally weigh from 15 to 30 pounds, although some weigh as much as 200 pounds. The majority of pumpkins are orange, but they also can be white or yellow. They are rich in vitamin A, beta-carotene and potassium, and their seeds provide protein and iron.

Facts taken from Candy USA: http://www.candyusa.org/Classroom/Facts/default.asp?Fact=Halloween

Epilepsy… Talk About It Y’all!

I will keep this post at the top of my blog and the link open for the entire month of November!

Be sure to scroll down to see newer posts and lets

Talk About It!

It’s November which means its National Epilepsy Awareness Month and time to

Talk About It!

 Did you know that over 3 million Americans and 50 million people around the world live with some form of Epilepsy?!

My daughter Meg is one of them!

So… 

We will be spending the month of November talking about Epilepsy and dispelling some of the ridiculous myths associated with it!

For instance…

Did you know some people think if you have Epilepsy you can’t play sports or be active?

FALSE

Tell that to Chanda Gun a goalie on the women’s Hockey team during the 2006 Winter Olympics or to Bobby Jones one of the most admired defenders to ever wear an NBA uniform! 

People with Epilepsy CAN play sports and have fun, they just have to be seizure smart about it and make sure their friends, coaches and fellow team mates are educated.

While epilepsy has had its challenges for my daughter, it has never stopped her from playing a sport and certainly doesn’t stop her from having fun!

Maybe you or someone you know lives with Epilepsy?

 Come on y’all let’s get people talking about it! 

Share your story, dispel a myth or just tell people to Talk About It on your blog and then come back and link up by clicking on the little froggy fellow below! 

I will keep this post at the top of my blog and the link open for the entire month of November!

Be sure to scroll down to see newer posts and lets

Talk About It!

 

 

 

Sometimes we forget…

… to teach the people nearest and dearest to us!  We’re so busy advocating and trying to get rid of stigma’s that we forget to educate and empower our own family with the same knowledge we want so feverishly for everyone else to accept.  Today my guest blogger is my sister-in-law Denise from Run DMT, you may also know her as @Denisermt on twitter.  I have to say I was touched when I read her guest post for the first time. I didn’t realize I’d made such an impact on her at a recent family gathering we’d had at their home and I’m glad she shared it with me and also decided she’d like to share it with you.  Thanks Denise, for helping us talk about it! xx

 

 A few weeks ago, I realized for the first time that I had never talked about it.  I had never explained epilepsy or my niece’s seizures to my children.  I had never explained to them why something as innocent as flashing house lights quickly on and off to create a disco tech isn’t so innocent to an epileptic child.

During a family get together at my house, our home was with filled with laughter and good food, but in a few moments we were about to be served an important lesson.   

Using several blankets and a princess pop-up castle, the children created a tent.  Of course, all good campers need a flashlight, so Allana found a flashlight to share with her cousins.  At first the flashlight was used to scare away the spooky woodland creatures but soon the flashlight created another scare when Allana found the strobe light setting and began waving the beam from her flashlight about the living room.

When my sister-in-law spotted the dancing beam of light, she began to panic.  Instinctively, Kirsten immediately jumped up and grabbed the flashlight from Allana. 

In my teaching days, I had students with epilepsy and a few even had photosensitive epilepsy.  On field trips to amusement parks, these students were not permitted to ride rides with strobe lights and they could not be photographed with flash photography.

Like many of the lessons I taught my students in my former life as a teacher, I had forgotten this one too.  I had forgotten how harmful a flashing light could be to a child with epilepsy.  Most importantly, I had forgotten to teach this important lesson to my own children.

Fortunately (and sadly unfortunately), Kirsten has years of experience explaining epilepsy and seizures to children due to raising her own epileptic child.  “It’s like when you are watching TV and the picture gets all blurry and fuzzy for a minute and then goes back on again. That’s what it’s like for Meghan.” 

I was amazed by Kirsten’s simple explanation for a sensitive and complex subject matter.  Most of all, I was amazed with Allana’s ability to accept the information, her compassion and her understanding  for the level of seriousness a simple dancing beam of light could impact her cousin. 

And at that moment, I realized epilepsy is something I should have talked about sooner with my children.